The 2020 Virtual UPIN Family Conference

Didn’t get the chance to tune in to this year’s UPIN Family Conference? Want to rewatch your favorite sessions from the day? Think one of your friends or family members might benefit from the resources we shared?

Well, UPIN has you covered.

You can now watch the recordings from all of our virtual sessions at any time here on our website. Check it out!

Opening Session & Facilitated Dialogue

One of the primary goals of the UPIN Family Conference is to create opportunities for connections. Following Dr. Butterfield’s opening remarks, we conducted a facilitated dialogue around three major topics: 2020: The Year We Learned to Live with COVID, Genetic Testing: What Are Our Options?, and Preparing for Your Clinic Visit.

Glass Half Full with Leslie Krongold

We were delighted to have Leslie Krongold join us as the keynote speaker for the 5th Annual UPIN Family Conference! Diagnosed with DM 1 when she was in her 30’s, Leslie is an inspiration for anyone and most especially those living with a disability. Leslie is a devoted educator, with a Doctorate degree in Education, who is passionate about coaching others through both the challenges and positive aspects of diagnosis. Sharing messages of courage, strength and positivity via her podcast, Glass Half Full, Leslie works to normalize and validate the emotional experiences of individuals who are impacted by debilitating conditions.

Disability Law Center, Utah’s Protection and Advocacy Agency

There are many ways in which legal issues affect the medical care of children with disabilities – access to appropriate educational services, housing availability and conditions, navigating Medicaid, and more. This presentation will explains who DLC is and what they can do for you. They work statewide, and all services are free of charge.

Adapting Clothing with Eaze – Adapteaze

Monica Allen, owner and creator of Adapteaze, demonstrates a simple adapted pair of sweatpants that will simplify dressing and undressing your wheelchair bound loved one. This will save lifts and help both the affected loved one and the caregiver in this challenging daily routine. She also recommends other options to ease daily dressing needs. Adapt-Eaze clothing is also available on Etsy for sale or special order.

Utah State Office of Rehabilitation – Vocational Rehabilitation Program

Attendees learned about vocational rehabilitation services and programs offered through the Department of Workforce Services, Utah State Office of Rehabilitation. Attendees were be provided with information about how to apply for services and the eligibility process, and with information about Pre-Employment Transition Services available for students with disabilities.

Expert Panel & Closing Session

In recognizing that our patients and their families are often working with additional resources outside of our clinics, this year’s conference closed with an Expert Panel session. 

During the 45 minute Expert Panel, attendees had the opportunity to hear from a variety of experts – Physical Therapists, Occupational Therapists, Speech Therapists, Dieticians, Pulmonologists, Social Workers, Geneticists, Genetic Counselors, Psychologists, and Neuromuscular and Neurology Specialists – that they interact with throughout their disease progression. These experts fielded pre-submitted questions from attendees for the first portion of the session and then engage in a brief interactive questioning portion from the live audience.

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