“Cure SMA’s national support programs are available to all individuals and families affected by SMA who reside in the U.S. Most of these resources are provided at no cost to those impacted by SMA.” Check out the CureSMA website for resources available for families with SMA at: National Support – Cure SMA.
Riders from the 2017 “Coast 2 Coast FSHD – An Epic Fund-Raising and Awareness Bicycle Journey” stopped by the UPIN Lab to meet with Dr. Butterfield and other members of the UPIN team!
See below for the miraculous story of one of Dr. Butterfield’s Spinal Muscular Atrophy patients who received groundbreaking gene therapy replacement therapy through one of our clinical trials!
Our colleague Sara Turner from Behavioral Health put together this extensive list of mental health and education resources for healthcare providers, patients, and families. It contains helpful patient care and self-care information that we have been sharing with patients and families! CHECK IT OUT: Mental Health and Education Resources COVID-19_0422020