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Utah Program for Inherited Neuromuscular Disorders
University of Utah
Utah Program for Inherited Neuromuscular DisordersUtah Program for Inherited Neuromuscular Disorders
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    • The 5th Annual and Virtual UPIN Family Conference Presentations (2020)
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  • OUR TEAM
    • FACULTY
    • ADMINISTRATION
    • LAB RESEARCHERS
    • CLINICAL RESEARCHERS
  • RESEARCH
    • Disorders We Treat
    • Current Studies
    • Laboratory
    • Publications
    • Poster Presentations
  • NEWS
    • UPIN News
  • DONATE
  • EVENTS
    • The 5th Annual and Virtual UPIN Family Conference Presentations (2020)
      • Post-Conference Resources
    • The 4th Annual UPIN Family Conference Presentations (2019)
    • RootsTech 2020

Tag Archives: FSHD

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  2. Entries tagged with "FSHD"

“The Remarkable Origins of FSHD Research in America”, The FSHD Advocate

UPIN NewsBy Gabrielle PalombaroNovember 19, 2020Leave a comment

The FSHD Advocate recently published an article about our groundbreaking research of the clinical manifestations and inheritance of FSHD in a large Utah kindred. Read the entire article HERE! 

Walk & Roll to Cure FSHD

By Gabrielle PalombaroOctober 4, 2020

Idaho Walk & Roll

By Gabrielle PalombaroSeptember 26, 2020

Colorado Walk & Roll to Cure FSHD

By Gabrielle PalombaroSeptember 12, 2020

2020 Walk & Roll to Cure FSHD

By Gabrielle PalombaroSeptember 12, 2020Leave a comment

When we began planning the local 2020 Walk & Roll’s to Cure FSHD we had no idea that a global pandemic, sequester-at-home restrictions, and public safety guidelines would threaten to derail our plans. Not to be deterred in our quest for a cure, we decided to transition our Walk & Roll’s to Cure FSHD into…

The National Virtual Walk & Roll to Cure FSHD

By Gabrielle PalombaroSeptember 12, 2020Leave a comment

“The 2020 Utah Walk & Roll to Cure FSHD has gone VIRTUAL! We are going virtual nationwide on September 12, 2020!   The Utah Chapter of the FSHD Society will be participating in the National Virtual Walk & Roll to Cure FSHD – the only national event focused solely on funding progress for FSH Muscular Dystrophy. Our world has been…

San Diego Walk & Roll to Cure FSHD

By Gabrielle PalombaroJuly 11, 2020

2020 FSHD Connect Conference

By Gabrielle PalombaroJune 27, 2020

Voice of the Patient Forum

By Gabrielle PalombaroApril 21, 2020

This event has been POSTPONED. Follow the FSHD Society – Utah Chapter website for updates on when this event will be rescheduled.

Utah Program for Inherited Neuromuscular Disorders
University of Utah 2019

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