The FSHD Advocate recently published an article about our groundbreaking research of the clinical manifestations and inheritance of FSHD in a large Utah kindred. Read the entire article HERE!
When we began planning the local 2020 Walk & Roll’s to Cure FSHD we had no idea that a global pandemic, sequester-at-home restrictions, and public safety guidelines would threaten to derail our plans. Not to be deterred in our quest for a cure, we decided to transition our Walk & Roll’s to Cure FSHD into…
“The 2020 Utah Walk & Roll to Cure FSHD has gone VIRTUAL! We are going virtual nationwide on September 12, 2020! The Utah Chapter of the FSHD Society will be participating in the National Virtual Walk & Roll to Cure FSHD – the only national event focused solely on funding progress for FSH Muscular Dystrophy. Our world has been…
This event has been POSTPONED. Follow the FSHD Society – Utah Chapter website for updates on when this event will be rescheduled.