Researchers Hope Experimental Gene Therapy Is An Answer To A Fatal Genetic Disorder

Check out this moving NPR story, by Jon Hamilton, with a spotlight on the first patient on the Pfizer Gene Therapy Clinical Trial for Duchenne Muscular Dystrophy. UPIN is currently a selected site for this clinical trial! For more information on current enrollment, check out our Clinical Trials page to contact the appropriate Clinical Research…

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Our colleague Sara Turner from Behavioral Health put together this extensive list of mental health and education resources for healthcare providers, patients, and families. It contains helpful patient care and self-care information that we have been sharing with patients and families!  CHECK IT OUT: Mental Health and Education Resources COVID-19_0422020

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Facilitating Social Interaction in Myotonic Dystrophy (Webinar), 28 March 2019

“In this webinar, Dr. Missy Dixon, PhD, MS, reviews the importance of social connection, including the physical health and mental health benefits of social connection, how the illness experience affects social connection and interaction, and how to navigate social connection for those affected with myotonic dystrophy and their caregivers.”  Access the entire webinar here!

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